Tag Archive: preemie parents


With an accomplished background as a marketing and business strategist, Tami Gaines has proven how individuals and business owners can achieve success from the inside out. She has been widely recognized as an expert and visionary among national media like The Wall Street Journal and has built an impressive client list that has included The Marriott, Goldman Sachs, Bank of America, Consumer Reports, Unilever and The Commonwealth of Virginia. With an M.B.A. from Columbia University and 25 years as an entrepreneur and executive, Tami could not have foreseen the events that would take her from the board room to the hospital room.

Tami believes that our will is a renewable resource and it is by sheer will that she was able to thrive during the five months of her life that she found herself: Unexpectedly pregnant with twins; Suddenly single after nearly 12 years of marriage because of the decision to keep them; Confined to a hospital bed for 5 weeks in an effort to maintain the pregnancy; And then an experienced mother in a new reality, fluctuating between prayer and advocacy for the health of the twins, born at only 25 weeks, weighing just over a pound and a half each. Her daughter spent nearly 4 months in the intensive care unit before coming home. Her son spent 15 months in the intensive care unit and 3 months in a rehabilitation facility before finally coming home in late August 2007, technology-dependent yet self-reliant. The twins join their older sister and brother, 10 and 7 years, respectively, in a home that had to be spiritually gutted and rebuilt to allow space for forgiveness of and gratitude to my former husband for leaving so that we could live from a place of faith and self-love.

Tami has used the lessons of her personal and professional journeys to restore her power and gain wholeness again. Developing an intimate connection with the Universe and then giving that connection a voice through the way she lives is her true devotion. She has expressed her truth in the way she gives context to experiences, takes action, makes decisions, in the people she chooses to surround herself with and the energy that she gives out and lets in. Her legacy will be one that empowers people to live their greatest lives, despite any challenge facing them.

At the encouragement of parents, doctors and hospital administrators, Tami has written Preemie Parents, 26 Little Ways to Grow With Your Premature Baby, to help other parents cope as she has — with heart wide open to learning life’s lessons. Both practical and inspirational, Tami has revolutionized the way people experience prematurity, divorce and other unexpected crises. Tami returns power to those who feel powerless as they go through their challenges by reminding them that “the context that we give our experiences is ultimately our defining story.”

“We never know how much power we have within us until we’ve gone through something, that before, we could never conceive of getting through.” — Tami Gaines

Article Source:  “Preemie Twins

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In the span of three months, Tami Gaines went from a successful working mom and mother of two to a single mother, pregnant with twins and dealing with a cold and distant husband who decided to abandon his family when Gaines refused to abort the surprise twins he did not want to have.  Over the course of those trying months, Gaines, using her faith, resilience, tenacity, family support, and strength, successfully navigated the challenges of life within the neonatal intensive care unit (NICU) after delivering her boy/girl twins at a mere 25 weeks gestation.
After triumphing through those turbulent, emotional and soul-testing times, Gaines emerged stronger than ever with four vibrant and thriving children and has since become a premiere advocate for premature babies.  An estimated 500,000 babies are born premature each year.
The Columbia MBA- graduate  and former corporate executive shares her journey in a guide book for other preemie parents in the recently released, Preemie Parents 26 Ways to Grow with your Premature Baby. Inside the covers of the 140 -page part memoir, part guide, part resource book, readers can look forward to getting emotionally committed to the story which led to Gaines having to become a single preemie parent to twins in the first place. I personally got enthralled in her recounting of events and could not put down the book because it is delivered in reflective but still casual and instructive format and style. I ached  while reading about the initial pressures she dealt with after her husband moved out of their bedroom, moved into the single room in the house and started a life as a single man leaving Gaines to deal with a difficult pregnancy and nurture their two daughters on her own.
Gaines has become a true advocate for premature babies and support for parents of preemies.
After the initial story, starting with a pneumonic P.E.A.C.E. which stands for the five principles that guided and influence Gaines during her journey, the 26 chapters are actually divided into terms and phrases starting with a letter of the alphabet beginning with Advocate and ending with Zero in: focus.  (Why not call it the ABCs of growing with your premature baby, I don’t know, but I digress?).

She is not preachy and neither comes off as judgmental and by sharing the vulnerabilities, self-blame and the low points that she endured with her audience, she becomes relatable to her readers who may have or may be currently suffering through similar turmoil. Gaines also infuses  in the book strategies for assembling allies and partners in the NICU from nurses and hospital staff.  For example, she shared in one of several “Tami Time” sidebars that she always requests that a nurse be with her during any conversation she’d have with the neonatologist. The purpose was to use the nurses as an interpreter, and have an emotional supporter there as well.  Seems methodical, but it isn’t. You can tell that her training in business and spirituality are the sources for these strategies. They  probably came as instinctual to her and what is natural to her can be resourceful and helpful to others.  Preemie Parents is instructional and very conversational.  The illustrations by Roni Orlina in the book match very well with each sentiment expressed within the book and the simplistic stick figures mixed with whimsical color create a sense of calm that a preemie parent may need at that time having to deal with layers and layers of other “stuff.”  Not all people may be able to relate to each of the 26 steps but just by reading them, they are provided perspective.  Sometimes, perspective is all you need.
Overall, Preemie Parents is a quick read and is a must-have gift for any parent of premature baby or babies.  I highly recommend it! Available for $15.95 (retail).*
*A review copy was sent complimentary to Bellyitch.

Written by JJ at Bellitch

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Stress is a natural outcome of dealing with a premature birth. In Preemie Parents®, we discuss the importance of dealing with stress. Some of them are:

  • Smoking
  • Drinking too much
  • Overeating or undereating
  • Zoning out for hours in front of the TV or computer
  • Withdrawing from friends, family, and activities
  • Using pills or drugs to relax
  • Sleeping too much
  • Procrastinating
  • Filling up every minute of the day to avoid facing problems
  • Taking out your stress on others (lashing out, angry outbursts, physical violence)

And then they offer us some very specific ways to deal with stress. There are several steps to dealing with stress in their formula:

Identify the sources of stress in your life

Stress management starts with identifying the sources of stress in your life. This isn’t as easy as it sounds. Your true sources of stress aren’t always obvious, and it’s all too easy to overlook your own stress-inducing thoughts, feelings, and behaviors. Sure, you may know that you’re constantly worried about work deadlines. But maybe it’s your procrastination, rather than the actual job demands, that leads to deadline stress.

To identify your true sources of stress, look closely at your habits, attitude, and excuses:

  • Do you explain away stress as temporary (“I just have a million things going on right now”) even though you can’t remember the last time you took a breather?
  • Do you define stress as an integral part of your work or home life (“Things are always crazy around here”) or as a part of your personality (“I have a lot of nervous energy, that’s all”).
  • Do you blame your stress on other people or outside events, or view it as entirely normal and unexceptional?

Until you accept responsibility for the role you play in creating or maintaining it, your stress level will remain outside your control.

Start a stress journal

A stress journal can help you identify the regular stressors in your life and the way you deal with them. Each time you feel stressed, keep track of it in your journal. As you keep a daily log, you will begin to see patterns and common themes. Write down:

  • What caused your stress (make a guess if you’re unsure).
  • How you felt, both physically and emotionally.
  • How you acted in response.
  • What you did to make yourself feel better.

Look at how you currently cope with stress

Think about the ways you currently manage and cope with stress in your life. Your stress journal can help you identify them. Are your coping strategies healthy or unhealthy, helpful or unproductive? Unfortunately, many people cope with stress in ways that compound the problem.

Learning healthier ways to manage stress

If your methods of coping with stress aren’t contributing to your greater emotional and physical health, it’s time to find healthier ones. There are many healthy ways to manage and cope with stress, but they all require change. You can either change the situation or change your reaction. When deciding which option to choose, it’s helpful to think of the four As: avoid, alter, adapt, or accept.

Since everyone has a unique response to stress, there is no “one size fits all” solution to managing it. No single method works for everyone or in every situation, so experiment with different techniques and strategies. Focus on what makes you feel calm and in control.

There will be more to follow in future blogs!

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I was given a copy of “Preemie Parents” by a friend of mine who thought I would get an insight into how spirituality and faith can help parents who are dealing with a child with severe medical problems. I do have two children, however they are both healthy and I have never experienced anything remotely close to what the author, Tami C. Gaines has. Although this book is targeted specifically to the parents of premature babies, I couldn’t stop reading it and was amazed at not only the strength shown by Ms. Gaines, but also how she has used her experience as an opportunity for growth and learning.

Tami C. Gaines was a normal, working mom, married and the parent of two children ages eight and five. At thirty-eight years old, it was assumed that she and her husband would have no more children between them, and this proved to be true. When Tami’s obstetrician confirmed that she was pregnant (with twins no less) her husband decided that he did not want any part of being a father again. He left Tami to not only deal with the pregnancy on her own, but also to look after her two young children. This began Tami’s journey – pregnant with twins, a single mother of two, soon unable to work and saddled with all the problems and challenges that would accompany those circumstances. On top of all this, her pregnancy was not “normal” and her twins would be delivered by C-section prematurely at twenty-five weeks – practically the earliest that allows any chance at all for survival.

In her book, Tami does provide some of the details of the medical issues that both she and her babies faced. The actual facts of these medical issues and complications are really secondary to her story. Every child is different, and a problem for one may not be a problem for another. Similarly, solutions for one may not work appropriately for another. Tami emphasizes that as a parent of a premature baby, although you will be required to become very knowledgeable, you do not need to have a PhD in obstetrics. She provides excellent tips (and more importantly, warnings) on how and where to get your information and how to use it wisely. The doctors, nurses and support staff have been trained to deal with premature babies – your job is to understand the what, when, where, why and how in anything regarding your baby (and you).

This book is written as a blueprint of ideas, suggestions and ways to cope for parents who are in a similar situation. She provides 26 topics, from A to Z ranging from “Advocate” to “Zero In: Focus”. Her single biggest piece of advice is to read what she has written, use what you can “at that moment” and file the other chapters away until the time comes when you need them. This is what she means by “Zero In: Focus” on getting your baby home. Your ultimate goal is to get your baby to the point where he/she can come home with you. When that goal is forgotten, distractions will threaten to take over and you will become frustrated with your progress.

There are also several chapters in the book that will assist you with helping yourself. A major issue that she stresses repeatedly is that you MUST look after yourself first and foremost. This (in my opinion) is exactly what Jesus meant in Matthew VII – “And why beholdest thou the mote that is in thy brother’s eye, but considereth not the beam that is in thine own eye? Or how wilt thou say to thy brother, Let me pull out the mote out of thine eye; and behold a beam is in thine own eye? Thou hypocrite, first cast out the beam out of thine own eye; and then shalt thou see clearly to cast out the mote out of thy brother’s eye.” When you have run yourself into the ground, you will not be able to “Zero In: Focus” on your ultimate goal. You will not be able to think clearly, you will take “shortcuts” to save time and you may accept decisions made by others without carefully considering all your options. This is a dangerous position to be in and not only will it endanger your health, it will endanger the safety and care that your baby deserves. Tami’s book will give you many tips on nutrition, exercise, rest, sleep, taking a break when necessary and one of the biggest things you can do – accept help gratefully when it is offered. If it isn’t offered, be selfish for yourself and your baby and ASK FOR IT!

The resource section at the end of the book (although the whole book is a resource section) covers some of the topics that you may not have even thought about. Support and non-support from family and friends, alienation, the financial impact (which will be significant), online resources and websites, exercise tips and more are covered so that your learning will continue. This book should not be your only source of information for your experience with your premature baby.

I found this book to be very helpful, and as I read it I thought of the many different scenarios where Tami’s advice could be put into practice. Targeted to the parents of premature babies, this book would also help the siblings of premature babies, teenagers facing their first pregnancy, grandparents, friends, close relatives and anyone associated with someone who is dealing with a premature pregnancy. The time to read this book is BEFORE the birth of your baby so you can put into practice the things that Tami has suggested. She admits that she was in a fog for the first three weeks after the birth of her twins, and until she made the conscious decision to “be present” for her babies, that time was lost.

The book is very well laid out, and the colour, graphics, illustrations and bonus “Tami Time” additions make the book interesting and visually appealing. Currently there is no e-book version available, however I would hope that the publisher will soon make this an option. With the amount of things a new mother has to keep track of, another book to carry around (no matter how helpful it is) may not hit the priority list and could easily be mislaid. An e-book reader would help solve this problem as they fit easily in a purse or handbag and are less likely to be left lying around. Should you decide to give this book as a gift make sure that you know the person reasonably well. Not all parents may be accepting of the fact that their baby may be premature, unless a doctor has already advised them of this possibility.

Tami Gaines has written a comprehensive guide to assist the parents of premature babies from the perspective of someone who has been there. Although the experience of each parent will be different, using this book to get you through the feelings of frustration, fear, anger, helplessness, hope, faith (and sleepless nights) will help to ease the journey. Tami has taken what could have been a paralyzing set of circumstances and used it to build her strength and courage to deal with practically ANYTHING that may come her way.  YOU can do the same.

Laughter and love,

Rick Fess

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From One Preemie Parent to Another

beparentsWhat an extraordinary week!  I stared in awe at my twins who turned 5 years old on March 21st.  How could so much time have passed since they were born at 1 lb. 12 oz. and barely 12″ long at 25 weeks.  My journey in the neonatal intensive care unit seemed not so long ago.  The lonely, reflective 5 weeks I spent on hospitalized bedrest cleansed me emotionally and spiritually.  The fear, stress, sadness and the emotional roller coaster of the NICU at once crippled me, and then rebuilt me over my 18 month journey with my hospitalized twins.  The pain and pride of enduring both experiences revealed the truth of who I am at my core, and freed me from those things that once hid my pure potential.  I remain grateful for every step of that unexpected journey.  Do you?  Can you?

Of course you can.  As impossible as it may seem, your NICU experience will completely transform you, if you allow it to.  I share my story and give you 26 specific steps you can take to walk your NICU journey from a place of empowerment, in my book, Preemie Parents, 26 Ways to Grow with Your Premature Baby, published by Sellers Publishing last year.  This week marked the official launch of Preemie Parents to coincide with the twins’ birthday!  I laid eyes on it on-shelf in Barnes & Noble yesterday.

This week also saw an extraordinary team of people help me with its online launch — starting with a contest for bloggers!

Although my son remains on oxygen, still has a trach and a g-tube, I’m in awe of both of my small warriors and mighty teachers.  My own growth and evolution also gives me pause.  But clearly, this was all in divine order.  It was intended for me to openly share my story, to help others write theirs.

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About Author

tamiTami C. Gaines, the mother of four children (including preemie twins), has achieved national recognition as an advocate and spokesperson for preemie parents. In addition, she has an accomplished background as a marketing and business strategist, motivational speaker, and trainer. In the business world, her impressive client list has included such companies as The Marriott Corporation.... red-arrow Read More

 

The Preemie Parents Foundation is a non-profit 501(C)3-   organization dedicated to  providing the parents and caregivers of  premature babies with the tools, resources  and support needed to take this unexpected  journey from a place of bewilderment to a  place of empowerment.

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